Yesterday was our last session at the Glenrose Rehabilitation Hospital. I quite honestly, don't know where we - as a family - would be without the help of Ryan, Sarah and Kristen, and all the support staff. They have been such an encouragement to Alex and to Jenn & I. I have never really been a huge fan of "traditional medicine" but these people have been such a HUGE blessing in our life. I would not trade the last 5 months there for anything in the world. If any of you guys read this, you have made a world of difference - you have picked the best time in history to be in your field, if only to improve the life of one family.
I hope to see you all again. I want you guys to witness the path you've put Alex on, as he continues to improve, recover, and become the Little Man he is meant to be. Without you guys, none of it could be possible!
Friday, January 14, 2011
Thursday, January 13, 2011
Playschool
This week Alex has taken another step in growing up - he has officially started playschool. Since these only run once per week we have enrolled him in two classes, once on Tuesday and once on Thursday for the next 8 weeks. He absolutely loves it! Apparently the conversation on the way to school on Tuesday went something like this:
Jason: "today is your first day of new school"
Alex: "is this school with other kids?"
Jason: "yes"
Alex: "are you going to stay or are you going to go?"
Jason: "would you like me to stay or should I go?"
Alex: "you can go"
But apparently Alex was the first to GO! He was into absolutely everything before J had time to finish the paperwork: jumping in the squares on the floor, play-doh, etc etc.
The Thursday program introduces the kids to science, all sorts of kid-friendly experiments (not sure who thought this one up, they're only three!) that they get to bring home later (eek?!?)
I went back to work last Monday and while I don't really miss the daily routine too much I sure am sad that I'm missing the first days of real school. Good thing Jason is there to record these moments!
Jason: "today is your first day of new school"
Alex: "is this school with other kids?"
Jason: "yes"
Alex: "are you going to stay or are you going to go?"
Jason: "would you like me to stay or should I go?"
Alex: "you can go"
But apparently Alex was the first to GO! He was into absolutely everything before J had time to finish the paperwork: jumping in the squares on the floor, play-doh, etc etc.
The Thursday program introduces the kids to science, all sorts of kid-friendly experiments (not sure who thought this one up, they're only three!) that they get to bring home later (eek?!?)
I went back to work last Monday and while I don't really miss the daily routine too much I sure am sad that I'm missing the first days of real school. Good thing Jason is there to record these moments!
Sunday, January 2, 2011
"Sieze the fat one!"
Alex LOVES Disney's "Robin Hood", more specifically, he loves the scene at then end of the archery tourney when the Rhinos try to catch the Chicken. We watch it just about every day and he just howls with laughter! Then he'll run around the house pretending to be the Chicken bowling over the Rhinos. It's awesome!
The last 2 times I watched it with him, I teared up. That part of the movie has come to represent Alex's own victory over what he's had to deal with. No matter what comes his way, he keeps his smile! My son is an overcomer and has a great deal to teach us all!
The last 2 times I watched it with him, I teared up. That part of the movie has come to represent Alex's own victory over what he's had to deal with. No matter what comes his way, he keeps his smile! My son is an overcomer and has a great deal to teach us all!
Saturday, January 1, 2011
Goodbye 2010!
I must admit - I'm not sad to see 2010 end, yet I am also not bitter about it. Someone asked Jason and I recently how we were dealing with all that happened to Alex without being bitter. Honestly, I don't know. Perhaps it's the 'peace that passes all understanding'; perhaps it is the prayers of others; perhaps it is a bit of redirected angst. For a while there I found it extremely frustrating to drive and try to find parking in the Glenrose's underground parkade, much more frustrating than watching my son try to make his left hand move without success. It just doesn't make sense.
Alex's EEG was inconclusive. Half the symptoms indicate seizures, half indicate muscles spasm, the docs really have no idea. They want to run another EEG and try to figure it out. As for Alex, he has started to be able to feel the 'dizzies' come on and can either fling himself onto the couch, hold onto something to steady himself or, the latest development - he has even managed to remain on his feet throughout the spasm without holding onto anything!
All the while, all throughout, Alex remains himself - inquisitive, loving and happy. Some kids cry and scream when they see the occupational therapist coming, but not Alex. He 'hides' and then pops out and runs to give him a hug! The physical therapists have constantly rearranged their schedules in order to keep Alex as a patient, and he absolutely adores them! He told me the other day that he wants to marry those two girls (didn't have the heart to tell him that they're taken).
I'm aware that some of you who read this are not Christian, or are not religious, while some of you are church friends and share our faith. Whichever the situation I appreciate your support and love and hope that you have been blessed by our story. While we would never choose to relive these past experiences we are also astonished by the highs and lows that have accompanied the journey. I never thought that watching a kid run could bring so much joy!!!
God bless you all and Happy New Year!
Alex's EEG was inconclusive. Half the symptoms indicate seizures, half indicate muscles spasm, the docs really have no idea. They want to run another EEG and try to figure it out. As for Alex, he has started to be able to feel the 'dizzies' come on and can either fling himself onto the couch, hold onto something to steady himself or, the latest development - he has even managed to remain on his feet throughout the spasm without holding onto anything!
All the while, all throughout, Alex remains himself - inquisitive, loving and happy. Some kids cry and scream when they see the occupational therapist coming, but not Alex. He 'hides' and then pops out and runs to give him a hug! The physical therapists have constantly rearranged their schedules in order to keep Alex as a patient, and he absolutely adores them! He told me the other day that he wants to marry those two girls (didn't have the heart to tell him that they're taken).
I'm aware that some of you who read this are not Christian, or are not religious, while some of you are church friends and share our faith. Whichever the situation I appreciate your support and love and hope that you have been blessed by our story. While we would never choose to relive these past experiences we are also astonished by the highs and lows that have accompanied the journey. I never thought that watching a kid run could bring so much joy!!!
God bless you all and Happy New Year!
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