Last week Jason took Alex for his third (or fourth?) EEG and another meeting with the neurologist. While Alex once again did not have one of his episodes during the EEG the neurologist did say that they saw some midline activity, whatever that means. The good news is that while Jason and Doc were talking Alex had one of his dizzies right in front of the Doc's nurse. She confirmed that he has been having seizures and the Doc has put Alex on some anti-seizure meds.
I am so thrilled to report that since day two of only HALF the dose of his new meds Alex has not had any more dizzies!!! So for about 9 days now he has not needed any new bandaids on his head!
Thanks to all of you for your support again, we are still working on his left hand which is at about 5-10% functionality. This is just going to take some time.
Monitor that that he doesn't get deficient in Biotin (B7), folic acid (B9) B6, D, and K.
ReplyDeleteAlso if it's Topiramate (Topamax) you might want to monitor for kidney stones.